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Tuesday, May 15, 2012

From the Land of the Weird

We are starting to notice a few strange things going on with K as we continue on our NR journey.  One of the weirder things is one of the exercises meant to help her two sides of the brain talk better.  As we pass through the midline, she starts blinking quickly or does strange movements with her mouth.  A few of the other families are having similar reactions, so it doesn't seem all that unusual, but it is definately weird to watch.  The professionals are saying that it is a sign that the two hemipheres of the brain are not fulling intigrated or connected when this is happening.  The creeping has been 25 min's a day of pure torture, she hates it and fights it every min.  When we read that some families have been doing creepings for 6 months it is pretty depressing and the constant battle of the wills over the creeping time is exhausting.  There are times when it appears to be getting better and more fluid, but then it goes right back to an uncoordinated mess.  Her moods also seem all over the place, like the filter has been removed and she is just exploding emotion she has little control over at everything.  Again, this seems to be pretty common with other families in that you take one step back before moving forward.  She was trying to hurt sister this weekend, so I was keeping her close and it just spiralled out of control ugly really fast as she tried to manipulate me into letting her go over by sis by telling me she was fine, but then would grab for sister the second I moved.  She went from cackling to crying to screaming to laughing, it was like emotion soup in her head.  I ended up taking her inside and she just sobbed and sobbed as i rocked her.  wow!  It was a lot to take in but I was able to employ the "C" for curiosity and the "E" for empathy at least.  For now, just hanging in there and trudging slowly ahead...we hope.... 

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